Monday, June 26, 2023

Passionate Powerful Soul

 


Parenting is tough but I’m sure you already know that. Either from experience or by hearing it from family or a friend. I was well aware of “the differences” that could take place before having a kid. What I didn’t factor in was the emotion that tags along with it. I am a Puerto Rican/Filipina Pisces woman, so let’s say I have the ability to dive deep into emotion if need be.

 But when it came to our one and only daughters’ life on the line at the time, I couldn’t do it. When Olivia was on life support at the hospital, I not only saw you step up and take lead, I witnessed your emotional vulnerability. My dear loving husband, seeing you cry on the front porch in your moms’ embrace still plays through my head as I sat merely steps away. Sitting side by side to you on the living room sofa, listening to you open up as I sat stoic, staring straight on, refusing to move a muscle is ingrained in my memories. We have always gone through trauma together, but my survival mode said, “no, not this time.” I couldn’t bare another miscarriage at a whopping 8 months pregnant. I needed to protect her, so I didn’t dare let emotion take over. Which was partly true but let’s be honest here, my brain just couldn’t fathom reality either. It was the first time my soul felt separated from yours. I was a bystander watching you go through deep sorrow and grief during the darkest time in our lives. I’m sorry I couldn’t be present with you this time but I’m so glad you found what you needed elsewhere to survive. But now it's my turn. My turn to feel all the unpleasantness but I’m not scared. I know you’ll help walk me through it.

The trials we’ve both experienced with our daughter has 100% evolved us into new human beings. It’s in the way we make decisions, looking at all obstacles and perspectives, outweighing pros and cons, researching data for informed decision making. It’s in the way we experience emotions, learning to fully and presently feel despite the vulnerability that brings. It’s in the way we argue, knowing that current issues are not as important as we thought they used to be. We can interpret what each other is longing for whether that’s space, quality time, sleep, or food. I’m hard on you as a parent and I see that. I’m sorry, still working on lessening the reins. But even in those moments when I’m upset because our baby Penelope is upset, you handle the situation with care. I am so proud of you as a father and a husband. This love we have for one another has matured into something so beautiful, so powerful, and so passionate.

We lean into each other’s arms during tragedy, and intertwined it creates a beautiful tightly woven rope. A strong rope we can tightly grip when the waves crash over us. To be vulnerable is to be strong, to be honest is to be strong. This relationship has been what feels like tested and stretched thin but yet remains. Statistics are not high for a marriage that has a disabled child. But we know that, we know that the “Magallon Odds” as we call them, are often times not in our favor. But the daily commitment to ourselves and to each other helps keep us accountable. We refuse to give up in every aspect and so we will continue to ride the waves together. So, here’s to us, celebrating our boss selves. Happy anniversary mi amor!


Wednesday, June 7, 2023

#HopeForOlivia

 Hustle for Hope 5K - The Seattle Way



 One and half month later, better late than never! Not only did we participate in our fourth Hustle for Hope 5K during HIE awareness month in April, we hosted it! Olivia was diagnosed with hypoxic ischemic encephalopathy at birth. It's a type of birth injury causing newborn brain damage that is caused by oxygen deprivation and limited blood flow. Hustle for Hope was created by the non-profit organization Hope for HIE to increase awareness, education, and support. It is an informational month for us to educate others about her health. We had enormous family and friend support walking, running, and rolling for Olivia at just over 60 attendees. We had some fun doing raffles, games, and face painting that raised a total of $3,000 towards the group Hope for HIE. We had pictures that hashtagged #HopeForOlivia #HopeForHIE #HustleForHope #ConnectedByHope. This year not only was it Hustle for Hope 5K - Olivia's Way, it was Hustle for Hope 5K- The Seattle Way as we represented the West Coast. 


Below are the 2023 Hustle for Hope 5K photos
Thank you from the bottom of our hearts to everyone who is helping to make this a yearly tradition :)





























































#HopeForOlivia

  HUSTLE FOR HOPE 5K - WASHINGTON WAY  April is HIE awareness month, and this year was our sixth Hustle for Hope 5K that we participated in....